Having a father who’s a chiropractor, Katelyn’s not sure when she was diagnosed. At 12, she knew her diagnosis was progressing requiring her to be fitted for a brace. Her life habits would also change, taking bath with baking soda, seeing a chiropractor 3x a week, different exercises, eat a special diet, not allowed to participate in many sports.
Her lumbar curve was in the 30’s, leaning her towards surgery. For her first year, she followed her new lifestyle. After a year, things started to tapper off. She switched out her brace, wearing the brace until she was 18.
As time went on, she discovered the significance the brace took on. A girl who was confident running for class president, would be emotionally confined with the isolation of wearing her brace.
One thing that helped her take this on, her best friends mom had scoliosis. As an adult she was thriving, living life, giving Katelyn comfort.
Based on her experience, she was...
Diagnosed in junior high school, with toe touch test. She went to children’s hospital in Salt Lake City, where she would meet with 6 doctors. She did her PT, she did whatever they told her. “Sometimes it just gets worse.” Alayne would be wearing a brace for 5 years. After , they gave her about 3 years until she would puncture a lung. At 27, she had surgery.
Prior to surgery, she had a passion for ballroom dancing. Her S curve was 12 lumbar & 83 thoracic. Her twin sister showed no signs of for Scoliosis. Years later, Alayne would look back at family films, seeing her rib hump.
Wearing her brace for 23 hours a day, taught her early on to be a positive & uplifting, not allowing her curves to define her.
“Were you in pain? I don’t know the difference.” Managing books for school wasn’t easy. At the request of her school, they required her to take all her books home. She quickly found that if she had a smaller back pack, she didn’t...
Jan & Sarah are co founders of World Spine Outreach. A non for profit organization that has been a labor of love for 13 years. It started when Sarah, a physicians Orthopedic assistant & Jan, a head nurse of Neuro surgery in OR, traveled with hospital group.
After going on a trip of 14 days, with 7 days of surgery’s they felt the need to have to do more. In 2008, they streamlined this idea & applied for 501c3.
Searching for a group to partner with, they came across the Butterfly foundation. Butterfly foundation is a small group who’s focus was in Dominican Republic.
After teaming up the Butterfly foundation, they saw the lack of equipment as well as education in DR. Jan & Sarah started to focus on teaching. They along with the surgeons taught the residents to sterilize & how to sew, among other things.
Since then they along their team have performed 600-700 surgeries.
Butterly project loved what was happening, that...
Dr. Mandy was brought on the scoliosis journey through her twin daughters & how they moved differently while playing on the swings. She would find out that her daughter was born with congenital Scoliosis.
During Dr Mandy’s schooling, there was training for Scoliosis but “not in the way it’s needed when managing this. They teach you the baseline.”
She has increased her training, allowing patients to have a very specific 3 dimensional over corrective brace.
She shares when she patients have scoliosis, they aren’t candidates for a brace, what are the next steps to be taken without having wait & see. Dr. Mandy’s method is delivered through what can be done at home. This can help to prevent progression increasing mobility in the spine helping to keep the nerves healthy.
Everyone’s cases are different, so it’s important to start with a provider & take it from there. She shares that with the proper implementation,...
Diagnosed at age 11 after shooting up in height. Tina grew up in Buffalo where winters were cold. Wearing baggy clothes kept her curves hidden until she was screened by the school nurse. From there, she went to an orthopedic where she would be fitted for a brace. Being a type A, she was very disciplined. Wearing the brace temporarily helped stop her progressions.
With this, she experienced the psychological aspects of wearing a brace.
Her curve continued to increase resulting in being fitted for multiple braces. At age 16, her orthopedic said she could take her brace off.
She moved, feeling a sense of new freedom. Her curve at this point was in the 50’s. Not being in pain, her curve wasn’t impacting her organs, her orthopedic did not recommend surgery.
Looking back, she shares that she pushed this under the rug, ignoring it.
At 18, she went to NYU. Focused on school & her passion for music. She put her Scoliosis in the back of her mind....
If you've been thinking about Mace Training & you're fused, listen to these stories!
Sarah- born with Scoliosis, feeling limited, never interested in sports. In her mid 40’s she became interested in exercise. Through her journey, she learned about how unlimited she has been.Trying a little bit at time, she discovered she’s able to do almost everything. One day while out with her dogs in the woods, she picked up a stick & started moving it. After finding that it felt good, she made a 4 lb Gada. She currently swings 15lb. What she likes about the mace, “it’s stable. My whole body is working to keeping me upright, controlling the weight. It’s not just arms, it’s my whole core.”
Kay- growing up playing sports. At 18 he started going to the gym, lifting heavy. At 25, his hip started hurting, causing him to start limping. He started to deteriorate without being diagnosed. Eventually he went to the hospital....